REAL EXPERIENCES WITH HYPOPHOSPHATASIA

You are your child’s advocate, their number one cheerleader. So if you feel something is wrong, trust your gut instinct.”

ELIZABETH, MOTHER TO JOSIAH, LIVING WITH HPP
What is hpp?

Real experiences with Hypophosphatasia

So, we just had a big realization in the family. We thought, ‘Oh, wow, this is something that we didn’t know about.’”

Liesl and her daughter Adeline,
both living with hpp
What is hpp?

REAL EXPERIENCES WITH HYPOPHOSPHATASIA

I wanted to share my story about living with HPP because I think it can help other people who have HPP.”

BRIAN, LIVING WITH HPP
What is hpp?

REAL EXPERIENCES WITH HYPOPHOSPHATASIA

Finally, things are all
falling into place. My symptoms are real, and
now I can move forward.”

CAROL, LIVING WITH HPP
What is hpp?

Hypophosphatasia (HPP)

hypo-fahs-fuh-TAY-shuh

HPP is a rare condition that can look and feel like many things: fatigue, pain, broken bones. While these symptoms may seem disconnected, HPP could be behind them all. It can also mirror symptoms found in other more common conditions like osteoporosis, osteopenia, and fibromyalgia. An important factor your doctor can look for is persistently low age- and sex-adjusted alkaline phosphatase (ALP) in addition to one or more key signs or symptoms.

LEARN MORE ABOUT ALP

How to Recognize HPP

HPP has several symptoms. No matter the life stage, you can get help in recognizing the signs. See below for the differences between children and adults living with HPP.

HPP IN CHILDREN

What should I know about HPP in children?

There can be many signs of childhood HPP, so you should know what to look for. Some of the most common symptoms in children include early tooth loss with the root intact, delayed motor milestones, delayed walking, and muscle, bone, or joint pain.

SPOT THE SIGNS

ADULTS WITH HPP

How does HPP impact adults?

Adults living with HPP may experience symptoms they have already normalized as something else. If you’ve experienced early tooth loss or rickets during childhood, those could be signs of HPP. Find out how to recognize HPP now.

HOW IS HPP DIAGNOSED?