Because HPP is a rare disease, it can be difficult to find stories of those living with HPP. Here we’ve collected stories of discovery, inspiration, and hope from those who understand HPP the most.
HPP Stories
Learn more about Carol’s journey to finding her HPP diagnosis.
Meet Brian, who was diagnosed in infancy, and learn more about his
experience living with HPP.
Hear from Elizabeth about how she and her family
navigated their experience with HPP.
Find out how twin sisters, Amy and Suzanne, searched for and
received their HPP diagnosis.
Highlights
Self-Advocacy on the Path to HPP Diagnosis
Advocating for Loved Ones with HPP
Living with HPP
Finding a Doctor
Be Transparent
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